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New Amyloidosis Support Group UK & ‘Info’ Day

Following my recent London trip to the National Amyloidosis Centre I was informed that a new website would soon be up and running mainly aimed at patient support.  One of the most important parts off this new website is sharing experiences which I suppose I’m doing here.  Anyway, if you are interested you can email stories etc to info@amyloidsupportgroup.co.uk

There is also a patient and family AL amyloidosis ‘Infoday’ on 29th May 2009 at the Institute of Physics, London.  You can register by calling Kirsty 0131 557 3332 or email kirsty@myeloma.org.uk.  A bit far for me and I’ve asked if there will be a more local event.  Keep you informed,

choo Phil

Filed under: Latest News on May 12th, 2009

2 Responses to “New Amyloidosis Support Group UK & ‘Info’ Day”

  1. Jamie Collis, on June 22nd, 2009 at 6:30 pm Said:

    thanks for the ‘plug’ for the new support group website. The site is now live at http://www.amyloidsupportgroup.co.uk. Its early days but I hope it contains some useful information.

    Most importantly, the site has a forum for people to share, and ask each other questions.

    It should be really useful as we believe there is nothing else available like it for people living with amyloidosis in the UK.

    I hope it is of use to you - I’m sure your advice and experiences could be really useful too - as well as anyone else who visits your excellent blog.

    thanks
    Jamie
    http://www.amyloidsupportgroup.co.uk

  2. ED Hardy, on June 1st, 2010 at 1:32 am Said:

    Great post, thank you so much for sharing.

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