Tuesday Morning (16th)
Hi folks, I’m still here but been through a few low days when to be honest, all I’ve done is try to sleep.
I’m in what they call the ‘nadar period’ which I’m told means that you have no white cells etc. This is scary because you can pick up infections easily. My problems have been i got an infection, along came a temperature and my blood pressure dropped. Normally this is no big deal but is more difficult for amyloid patients, in my case with cardiac and renal involvement. Net result anyway is that I’ve put on 7kgs of fluid.
The challenge is to get this off without upsetting the kidneys, heart which is tricky I’m told. My nausea has bean a little better but not eating much. I seem to have no saliva as my stomach and mouth continue to recover from chemo.
This is day ‘plus 10′ so hoping I’ve hit bottom now. The cause of the infection could have been a bug that crept in down the hickman line. As a result the line has been removed. My next goal is to get back to my baseline weight of 78 from current 85!
Speak soon Phil
Filed under: Latest News on March 16th, 2010
Keep positive-nearly over the worst and you can concentrate on getting better.Know its going to take a while but it will be worth it as you can have a longer time without any treatment.We are all thinking of you and wish you all the best.Good job you have Penny to look after you. I’m sure the girls are missing you but you will have loads of time to catch up when you get home. Love you loads-Helen and the rest of the Tuckersxxxxx
Forgot to say mum sends her love.Will be up to look after you all as soon as you need her.xxxxxxx
Just been told about your site. Lots of colleagues at SoTCC thinking of you and Penny. Keep fighting those nasty bugs!
All the best
Martyn