5 days since first Dose of ‘Pacman’ drug

Hi, its now Day 5 since new drug was introduced to my body and he seems to be able to handle it!  Not sure

Chemo Number 3 Update

3rd Blast of Chemo has now come to an end so we’ll have to wait and see how good this latest cocktail is!! I managed 4 cycles of Cyclophosamide, Velcade and Dexamethazone or cVd for short, and finished this on the 5th December 2012. The Docs wanted to give me a few more doses but [...]

September 2010 Update

Hi all, just received my serum free light chain results for August and thankfully they are still reading in the normal range (Lambda 5.6 – 26.3 mg/l).  My lambda was 20.0 and my kappa was 10.9 (normal is between 3.3 – 19.4 mg/l). 

Latest – October 2009

Hi, been a while since I updated the blog so here goes.  The chemo is still holding back the SFLC’s but there has been a slight increase since coming off the drugs. 

Update – My Amyloid Symptoms

Did I know something was wrong before diagnosis? Looking back several small things happened but I thought they weren’t significant at the time.  I had just stopped playing competitive football on Saturday’s but carried on with sport like squash, 5-a-side, biking home from work (12 miles) etc.  I noticed about Sept 07, that at times [...]